I had no intention of blogging tonight but it's close to 5:00 am and I'm still wide awake so here I am. It's still Sunday to me even though I know some people are waking for work. Yes, I remember Mondays well. Days seem to blend together now. I know days by Dr. visits and I know when it's getting close to Saturdays with my Mom. I have time with Amanda and Brayden tomorrow. I will get to see Brayden's recently discovered ability to crawl, and Amanda is treating me to a mani-pedi. I'm pampered.
Saturday was crazy fun with Mom and Julie. We hit up Marshalls and Old Navy. Yes I did get some new shoes for my newly freed feet along with some clothes to fit my ever expanding body. My stomach is huge, especially on the right side. Now I know there are different body types. Everybody knows the apple and pair shape. Now don't get me wrong, I've gained all over but in an odd way that 40 has nothing to do with. My stomach is fatter on the right side, my left boob appears larger than the right and my useless right leg is much smaller than my left. there are other oddities going on with my body shape too.
Let me explain these. ALS has decided to play around with my right side much more than my left. I have lost abdominal muscle and you'd be surprised how much fat and organs a little abdominal muscles can hold in place without effort. Mine are very weak so everything protrudes out, they're weaker on my right side so it protrudes out more. My left boob seems larger because the chest muscles on my right side have atrophied, so with my bra on and breasts moved up in the right position (that does have to do with 40) they become like two different sizes when they're not. My right leg is just atrophied all over so it's quite a bit smaller than my left which is still holding muscle and fat.
Back to Saturday, I wasn't about to go try on anything that had to be pulled up my legs, so I just tried on tops where I found them. It was an unusual scene. I loved every second of it. We had fun, finishing the day off at Steak n Shake. I had a peanut butter and banana milk shake and some of Julie's soft chili cheese fries. At home I could have gotten them down better but it would have been a site. I have my ways of getting things down that I just can't do in public.
None of this mattered to me Saturday. We laughed getting me in the car. We used a transfer board a couple time and I went for it a couple times withe my left side strength. One time I was making it and Julie came in toward me from the driver's side. I saw it coming, she was reaching out for my left arm to help me along, I said "This is my good arm." It didn't register so when she pulled the arm I went straight down on the seat. My right arm can't hold my weight. Mom was still helping with my lower half so with some twisting and contorting I made it in the seat. It was one of the better laughs of the day. I have several but I'll stop there. I treasure the days that come together by me having the energy and others the time to spend. Too often I feel too weak, major fatigue or back pain going on to have a day like that.
I did get a little done on the site today. That's an ever evolving slow process, especially if I intend to put my efforts in the blog. The blog takes more than I ever imagined.
I'm glad I shared this happiness because I plan on going for some tough topics this week or sometime really soon unless something pressing comes up I want to share.
If my grammar mistakes bother you, just get over it. I'm not a professional writer and I mentioned this was a concern of mine from the beginning but I'm getting over it. I've seen much worse. If you're have trouble following, it's more than likely a comprehension or ego problem on your end than my writing skills, OK?
Until next time, take care,
April
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Showing posts with label Fun Times. Show all posts
Showing posts with label Fun Times. Show all posts
Sunday, April 14, 2013
Tuesday, April 9, 2013
A Gain For A Loss
OK, at the end of yesterdays blog post, I mentioned lifting up a bit. I feel like adding a little sugar to the spice.
When I was first fitted for my AFO, It was so nice to be able to walk with a barely detectable limp. This came with a price I was very willing to pay, actually already paying, my shoe options were limited.
Anyone out there just getting an AFO, I did learn that New Balance and Sketchers tennis shoes worked best for me. The shoe needs to be wide enough for the brace, especially at toes and deep enough at the heel. I don't know if these shoes will be best for everyone. I had a solid fixed AFO. I where a regular 7 shoe size and I have a
narrow heel. To the right is a picture of my AFO in my Sketchers.
Now I figured I would be getting my drop foot all fixed up, and this was all temporary. It turned out to be the first of three adaptions to keep me walking. (to follow was adding a cane, then rollator.) so I was pretty disappointed to learn this was permanent. Then, what about my beloved shoes? My choices became steel toed construction boots or tennis shoes that took a lot of trying on to find at first. I'll take the tennis shoe, thank you.
When I recently lost the ability to walk I remembered reading online a while back that the best thing about being in the chair is you can wear the shoes want. How exciting! I want to go try on shoes now. I will be hitting up thrift stores on Saturdays with my Mom, and I've been looking at amazing online deals for fun.
I've always been a thrifty shopper, but I do love to shop. If I'm not at a thrift shop, I'm a TJ maxx, Marshalls person usually. I love to shop online too. Now that I can't just hop in the car and go to these place I have a lot of fun shopping online. Budget is real tight right now, so there are no big shopping sprees, but I've always enjoyed real window shopping too. It's just as fun on line to me.
I still have pretty good use of my hands overall, especially my left, but they've gone enough to make putting my contacts in pretty difficult. It's been so long since I tried, I'm not positive I still can. It would definitely be a time consuming chore.
My youngest son, Tyler, was due for glasses not long before my diagnosis. He bought some from an online eyeglasses store, Warby Parker, while visiting home. It's pretty neat because you can look through their collection and chose up to 5 pair you like and they'll ship you the frames with Plano lenses to keep up to five days and then return in the box they send. Free shipping both ways. He chose the Langstons. I really needed a pair of glasses so I bought the women's version of his Langstons. These glasses were just under $100.00. The least expensive pair of glasses I had ever bought. The only downfall is for us aging people needing a little help reading is they don't offer progressive lenses. Now $100.00 seems expensive.
My newest guilty pleasure is buying glasses online at goggles4u.com, they
usually have great deals, especially on their home brands. I have bought glasses from there for about $10.00. That includes shipping, and I have a strong prescription. That doesn't include progressives, but they do offer them. I love spending the $10.00 and trying all different styles and colors. I tend to like them on the wide side for my face. There are several online glasses stores that have $6.95 and up. zennioptical.com is another one worthy of checking out. Just be sure to have your pupillary distance correct. If you already know your prescription and don't need an eye exam, Walmart optical is good about measuring it for you on the spot if not busy. That was our experience.
Above is a small collection of my inexpensive glasses.
That's 3 ways you can turn a loss into something new. They're fun even if you didn't lose anything.
1.Newly in a wheelchair and no longer need an AFO? Now you can wear any shoes you like, plus they stay clean and won't get worn from walking. Find a nice buy, sell and trade shoe store and you'll get top dollar for your shoes when you take them back in great shape!
2. Have you lost the ability to drive but love to go shopping, or just browse? Get on that computer and shop or browse your heart away!
3. Are you a contact lens wearer and need to change to glasses? No matter your budget, shop away online!
I hope any of this information is helpful to someone.
Until next time, take care,
April
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When I was first fitted for my AFO, It was so nice to be able to walk with a barely detectable limp. This came with a price I was very willing to pay, actually already paying, my shoe options were limited.
Anyone out there just getting an AFO, I did learn that New Balance and Sketchers tennis shoes worked best for me. The shoe needs to be wide enough for the brace, especially at toes and deep enough at the heel. I don't know if these shoes will be best for everyone. I had a solid fixed AFO. I where a regular 7 shoe size and I have a
narrow heel. To the right is a picture of my AFO in my Sketchers.Now I figured I would be getting my drop foot all fixed up, and this was all temporary. It turned out to be the first of three adaptions to keep me walking. (to follow was adding a cane, then rollator.) so I was pretty disappointed to learn this was permanent. Then, what about my beloved shoes? My choices became steel toed construction boots or tennis shoes that took a lot of trying on to find at first. I'll take the tennis shoe, thank you.
When I recently lost the ability to walk I remembered reading online a while back that the best thing about being in the chair is you can wear the shoes want. How exciting! I want to go try on shoes now. I will be hitting up thrift stores on Saturdays with my Mom, and I've been looking at amazing online deals for fun.
I've always been a thrifty shopper, but I do love to shop. If I'm not at a thrift shop, I'm a TJ maxx, Marshalls person usually. I love to shop online too. Now that I can't just hop in the car and go to these place I have a lot of fun shopping online. Budget is real tight right now, so there are no big shopping sprees, but I've always enjoyed real window shopping too. It's just as fun on line to me.
I still have pretty good use of my hands overall, especially my left, but they've gone enough to make putting my contacts in pretty difficult. It's been so long since I tried, I'm not positive I still can. It would definitely be a time consuming chore.
My youngest son, Tyler, was due for glasses not long before my diagnosis. He bought some from an online eyeglasses store, Warby Parker, while visiting home. It's pretty neat because you can look through their collection and chose up to 5 pair you like and they'll ship you the frames with Plano lenses to keep up to five days and then return in the box they send. Free shipping both ways. He chose the Langstons. I really needed a pair of glasses so I bought the women's version of his Langstons. These glasses were just under $100.00. The least expensive pair of glasses I had ever bought. The only downfall is for us aging people needing a little help reading is they don't offer progressive lenses. Now $100.00 seems expensive.
My newest guilty pleasure is buying glasses online at goggles4u.com, they
usually have great deals, especially on their home brands. I have bought glasses from there for about $10.00. That includes shipping, and I have a strong prescription. That doesn't include progressives, but they do offer them. I love spending the $10.00 and trying all different styles and colors. I tend to like them on the wide side for my face. There are several online glasses stores that have $6.95 and up. zennioptical.com is another one worthy of checking out. Just be sure to have your pupillary distance correct. If you already know your prescription and don't need an eye exam, Walmart optical is good about measuring it for you on the spot if not busy. That was our experience.Above is a small collection of my inexpensive glasses.
That's 3 ways you can turn a loss into something new. They're fun even if you didn't lose anything.
1.Newly in a wheelchair and no longer need an AFO? Now you can wear any shoes you like, plus they stay clean and won't get worn from walking. Find a nice buy, sell and trade shoe store and you'll get top dollar for your shoes when you take them back in great shape!
2. Have you lost the ability to drive but love to go shopping, or just browse? Get on that computer and shop or browse your heart away!
3. Are you a contact lens wearer and need to change to glasses? No matter your budget, shop away online!
I hope any of this information is helpful to someone.
Until next time, take care,
April
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